For someone who was discharged on Sunday night, Davis sure seems like he likes the hospital. He was there for 4 hours yesterday, and 6 hours today. And will go back on Friday.
We're out of the hospital. I think.
Yes, we are. The fact that we have to cook and clean for him, try to retrain him so that "normal" doesn't mean sitting in bed, watching Diego, and muching on snacks 14 hours a day, and that I have to do things like flushing his feeding tube, sticking him with needles, and hooking him up to a machine at night reminds us all too well that we've been discharged.
Definitely a double-edged sword, this living-as-an-outpatient thing. :)
We've been "home" for 3 days now, and the re-training part's been the hardest so far. After being largely confined to a bed for 6 weeks, it's hard to be re-trained. And to be the re-trainers.
But there are moments of pure joy too, like when he just stood up and walked a few steps tonight, or when he walked all across the room on his own at the clinic today, or when we lay him down at night and then get to lay down in a real bed too. All very nice!
So, like the last 6 weeks have been as a whole, it's an adjustment. But all in all, things are going well. He's still got his feeding tube in, but that's just to feed him water on a very slow drip overnight because he's not quite drinking enough during the day yet. (And to sneak in one of his meds since he really doesn't like a syringe being stuck in his mouth. Can't imagine why.) But he's getting there, and hopefully on Friday we'll be able to have that taken out.
We're needing to go in at least twice a week now for blood tests and general checkup tests. He'll have another CT scan done towards the end of January to take another picture and really see how things are going. The tumour marker numbers continue to drop, which is still encouraging. He continues to get a little more back to normal each day, and hopefully over the next couple of weeks he'll adjust more completely to life "on the outside", just in time to go back in for round 3. But this time he should only be in for the 5 days of chemo plus maybe another one or two as needed.
We know that a lot of you continue to keep us in prayer and in support in many other ways. Thank you so much for all you're doing; we've been so very blessed by it all. As you pray, please pray for continued recovery, and now for a quick adjustment to life at "home", for patience and strength for Suzanne and I (yes, I know that's a dangerous prayer), for travel mercies for me this weekend as I head back Sat-Mon, and for Suzanne this weekend while I'm gone. She'll have family here to help, for which we're grateful too.
It seems weird to be writing this from my (actual) home computer sitting at a normal desk in our "home", rather than at the dark bedside on the mattress beside Davis. It's so...quiet...and bright! That's a good thing. It means Davis is sleeping nicely and I'm enjoying a Rickard's Oakhouse (a winter lager from the fine folks at Rickard's - a rather nice companion to my favourite ale, their Red...and it pairs surprisingly well with gingerbread M&Ms). Plus, the big store on Cambie & 41st has a very good selection of Okanagan wines, including the Black Sage Cab Franc we discovered this summer at Sumac Ridge...mmm...and a whole host of others from around home (no quotes on that home!). I have to admit, it's a welcome site to see the racks of "BC VQA" filled with familiar names. Home is, after all, the best place in the world to go wine tasting.
Though the last few days have been a bit stressful, I mean what I said that we've been so blessed by so much support, and so I leave you tonight with 1 Corinthians 1. I may have quoted this in a previous post, but I'm too lazy to look at my other posts to check, and it's never a bad thing to get repeated exposure to the Scriptures. I echo these words of Paul tonight, applying them not to the church in Corinth, but to the church in Canada and around the world.
Paul, called by the will of God to be an apostle of Christ Jesus, and our brother Sosthenes, To the church of God that is in Corinth, to those sanctified in Christ Jesus, called to be saints together with all those who in every place call upon the name of our Lord Jesus Christ, both their Lord and ours: Grace to you and peace from God our Father and the Lord Jesus Christ. I give thanks to my God always for you because of the grace of God that was given you in Christ Jesus, that in every way you were enriched in him in all speech and all knowledge—even as the testimony about Christ was confirmed among you— so that you are not lacking in any gift, as you wait for the revealing of our Lord Jesus Christ, who will sustain you to the end, guiltless in the day of our Lord Jesus Christ. God is faithful, by whom you were called into the fellowship of his Son, Jesus Christ our Lord.
1 Corinthians 1:1-9